Stalked by cancer: how an Orange family copes with rare genetic disease

By Ashlea Pritchard
Updated May 26 2015 - 7:59am, first published 3:30am
CLOSE TO HOME: Great-grandmother Pauline Straney with her granddaughter Michaela Jacobs, great-granddaughter Ruby Phillips and daughter Dionne Jacobs. Ms Straney hopes heightened awareness of a rare genetic condition can help find a cure. Photo: JUDE KEOGH                                                                                                                                                                                                                                   0525memorable2
CLOSE TO HOME: Great-grandmother Pauline Straney with her granddaughter Michaela Jacobs, great-granddaughter Ruby Phillips and daughter Dionne Jacobs. Ms Straney hopes heightened awareness of a rare genetic condition can help find a cure. Photo: JUDE KEOGH 0525memorable2

GREAT-grandmother Pauline Straney hopes generations to come can live free from the rare genetic disease that binds their family together. 

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