The syndrome can cause vision loss, obesity and kidney abnormalities, among other impacts.

But Saxon’s life became a little easier yesterday thanks to Sean Griffiths and the Bathurst Freedom Riders, who raised almost $1800 to buy Saxon some new orthopaedic shoes to replace the ones he has outgrown.

The Bathurst chapter of the Freedom Riders held a social ride to Millthorpe, one of three fundraising activities held by the group in the past week.

Mr Griffiths said the Freedom Riders hoped to show a positive side to motorcycle clubs.

“We raise money to help children,” he said.

“We knew Sharon [Saxon’s mum] was struggling, so this year we picked her [to help]. Next year we will choose someone else.”

Mr Griffiths said Saxon had outgrown his shoes – which he only got last year – so quickly because of the syndrome’s effect on his growth. 

“Our goal has been to raise enough to buy him new ones; anything else is a bonus,” he said.

Mr Griffiths is confident the group of riders will go close to raising the $1800.

“We held a barbecue at Masters last week and raised $800, and we took buckets around the shops raising another $400. With today’s ride, we got $10 per bike, plus we have raffles, which I’m hoping will get us to $1800.”

Mrs Evans, Saxon’s mum, said she was overwhelmed by the efforts.

“When I woke up this morning and saw the weather I thought there would be a maximum of five riders here, but they just kept rolling in,” she said.

“What Sean has done for us is unbelievable.”