AFTER 10 grueling days in Malaysia, where her body was subjected to intense medical treatment, Jaylene Reynolds has arrived back home.
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Ms Reynolds, 26, has suffered from Multiple-Systemic Infectious Disease Syndrome (MSIDS), a symptom complex of Lyme Disease and multiple tick borne co-infections, for more than half her life.
As a result, she regularly experiences chronic pain, chronic fatigue, seizures, sleep paralysis, pins and needles and tremors, just to name a few symptoms.
While she has been to doctors and tried out different treatments to make her well again, it wasn’t until October, 2016 that they were able to get the conclusive diagnose of MSIDS.
As it took so long to reach a diagnosis, her case is very severe and has left her with only one option, to seek specialised Hyperthermia treatment overseas.
Ms Reynolds had to be put on antibiotics for a few days before she went under anesthetic, at which point her body was heated to 42 degrees.
She said it was an “extreme experience”.
“During Hyperthermia my temperature reached 42.2 degrees and my heart rate 175. I was under anesthetic for over nine hours,” she said.
“The procedure went well with no complications but it has been a tremendous strain on my immune system.
“My intravenous antibiotic therapy continued daily along with supportive nutrients and supplements.”
Unfortunately, this will not be the only time Ms Reynolds undergoes the treatment.
She will have to fly back to Malaysia after six weeks to repeat the process.
“Now that I'm back home, I will continue intravenous therapy along with my other medications, preparing for my next trip,” Ms Reynolds said.
If the second Hyperthermia treatment isn’t enough, Ms Reynolds’ will make a third trip to Malaysia six weeks later.
Her continual struggle with MSIDS has put both emotional and financial strain on her family.
They have spent a lot of money to find the right diagnosis and since her diagnosis has had to spend $3000 each month on medication.
Now they face the costs of treatment in Malaysia, which is around $15,000 per trip.
The family has appealed to the community for help, setting up a fundraising page and holding a benefit concert last November.
More fundraising will be done in May ahead of Ms Reynolds’ next trip.
“There is a fundraising night planned at the Centennial Hotel at Gulgong on May 29 with local Gulgong talent Wicked Whiskey, who just played at the music festival at Mayfield Garden in Oberon, and the Two Mile Twangers,” she said.
“A large amount of specialty items have been donated to be raffled off, being drawn on the night.”
The Gulgong Social Club also plans to donate money from a golf day on May 19 to Ms Reynolds’ cause.
Members of the public can continue their support by donating to the GoFundMe page.
There is also an account set up at Reliance Bank called Fight the Bite. People can donate in person at the bank or make a deposit using the following details:
- BSB: 882-000
- Account Number: 100117729