JAYLENE Reynolds will need to undergo a third round of Hyperthermia treatment overseas to regain control of her life again after years living with an invisible illness.
Subscribe now for unlimited access.
$0/
(min cost $0)
or signup to continue reading
The 26-year-old looks like anyone else her age on the surface, but is suffering from Multiple System Infectious Disease Syndrome (MSIDS).
As a result, she endures symptoms such as chronic pain, chronic fatigue and seizures, often left bed-ridden and unable to enjoy things most take for granted.
In April, she went to Malaysia for her very first Hyperthermia treatment, which at its most intense saw her body heated to 42 degrees celsius.
Six weeks later, she flew back for a second round and she is now back in Australia recovering.
Unfortunately, the recovery following her second round of treatment has not been as smooth as the first.
“As for the actual procedure, it went well, my body was under sedation for over eight hours and reached the temperature of 42.2,” Ms Reynolds said.
“Unfortunately, when I came out of recovery I had no feeling in my right foot. There is a risk that the procedure can cause nerve damage. In some cases can cause ‘drop foot’.
“Drop foot in this case, is the dropping of the forefoot, due to damage to the fibular nerve causing paralysis of the muscles of the lower leg. It can be temporary or permanent.”
She is working closely with a specialist in Sydney and her masseuse to heal the drop foot.
Ms Reynolds also came out of the treatment in pain, feeling like she had sunburn inside and out, along with pain from being turned over during the procedure.
While the treatment has been intense and recovery difficult, Ms Reynolds said she truly feels that her health is improving.
Being able to say that is a huge achievement, as she went undiagnosed for more than a decade and had yet to find a treatment that worked for her.
“I have now been home for two weeks and, although I am exhausted, I am positive with the progress I have made,” she said.
“I have now been eight weeks without a convulsive seizure, tics and twitches. I also haven’t had any blackouts and many of my other neurological and neuropathic symptoms have improved.”
Ms Reynolds is expected to return to Malaysia in a few months for her third round of Hyperthermia.
“Firstly we need to wait and assess the nerve damage and wait for the inflammation in the rest of my body to heal,” she said.
“Some time is also needed to wait and see how the body has responded to the Hyperthermia. In this time I’ll maintain my antibiotic treatment as well as my other medication regime.”
Has Jaylene’s story inspired you? You can help by donating to her GoFundMe page or direct depositing a donation to her account at Reliance Bank. All funds go to paying for her Hyperthermia treatment, which comes at a cost of around $15,000 per session.
- BSB: 882-000
- Account Number: 100117729